9am - Oncology hospital with 3 x Doctors and 1 x nurse:
- Discuss chemo regime for this week
- Potassium levels low in blood - get it sorted
- Haemoglobin down - more blood please
- What about chemo next week - "lets decide at the end of this week"!
- When and who will take the stitches out from the last operation
- Book a dietitian - low protein levels, shes got to run the equivalent of a marathon in January (operation)
- The telly is not working - who can fix that
- and on and on and on..............................
2pm - CAMS (Children and Adolescent mental health services) - with 1 x doctor 1 x family therapy worker 1 x
Psychiatrist
- How have the last six weeks gone
- What shall we do next
- Silence
- More questions and discussion............................................
God love the NHS - its a mixture of "magic and monster" (thank you Fiona for that wonderful expression). I am so grateful that we have the NHS - but its exhausting and frustrating as well.
Thinking of you and the girls. Missing you all very much. Big love to you all xxx
ReplyDeleteFeeling the love, hope you having a great time x
ReplyDeleteFeeling the love, hope you haveing a great time x
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